To those people who have been told to prepare for placement on the Waiting List.
(If you are unsure then you have not been told).
Have a mobile phone
Install “call waiting” on your home phone.
Make sure you have ambulance cover.
Let the Transplant Team know as soon as possible for any changes in your circumstances.
Do not hesitate to contact us regarding any issues that are of concern to you.
Become thoroughly familiar with this book.
It is strongly advised that you have all your affairs in order prior to being actively listed for transplant. This includes making a will and organising power of attorney.
It will be very much to your advantage if you can arrange for your GP to be involved in your ongoing care after the transplant. Please discuss this with them.
Await further instructions.
Meeting with Transplant Coordinator
If you are considered as suitable for immediate “Listing” for Transplant, the Transplant Co-ordinator will contact you to arrange an appointment for you and your family to come and see him.
At this appointment:
Details of the surgery will be discussed with you.
Discussion will take place of what to do when the call comes.
The Coordinator will confirm your contact details with you, this will include all relevant telephone numbers including a mobile telephone number (you will need to be contactable at all times)
Once you have been accepted on the waiting list, the final decision to have a transplant is still up to you. Be ready and available for a transplant call at all times, unless otherwise discussed with medical staff and Transplant Coordinator.
You will need to be contactable 24 hours a day, 7 days a week. The Liver Transplant Coordinator will discuss this with you. He will also discuss travel and accommodation arrangements with you. Waiting time can vary from one day to many months, possibly years. There can be much anxiety and stress whilst you wait for a suitable organ.
Whilst waiting for transplant, you will return to the clinic for regular follow up, usually on a monthly basis. You need to notify us if you become unwell or if you are admitted to hospital for any reason.
WHAT TO DO IF YOU BECOME UNWELL AT HOME OR HAVE ANY CONCERNS RELATED TO YOUR TREATMENT:
Contact Margaret Gleeson at the AW Morrow Liver Centre, Monday - Friday 8am - 5pm. Tel. 9515 7263
After hours: Call Liver Registrar on-call Tel. 9515 6111
If you feel your illness is unrelated to your transplant or liver disease, you should see your local General Practitioner (GP)